The objectives of IFXS are to:
Promote public awareness of Fragile X Syndrome, the cognitive and behavioural difficulties associated with the syndrome, the likely impact on individuals and their families, and good practice in meeting their special needs.
Provide support for families caring for individuals with Fragile X. Provide an organisational focus to represent at a national level the special needs and interests of individuals with Fragile X. Gather and disseminate current information regarding Fragile X and the treatment of its symptoms.
IFXS is run by a committee of volunteer parents and family of individuals with Fragile X Syndrome.
Chairperson: Maria Panza
Treasurer: Debora Panza
Secretary: Maire Lambertini
Sheila Mac Nally
We need your support and welcome the participation of our members and the involvement of those who can offer their expertise to IFXS.
Currently, we are funded by membership subscriptions, donations and fundraising.