Maria Panza informs about Fragile X and her experience on Kildare FM radio podcast.
See our Fragile X media pack.
Maria Panza, Chairperson of the Irish Fragile X Society spoke, along with other parents, about coming to terms with a diagnosis of Fragile X. Read the article in the Irish Independent of 8 November 2011.
Fragile X is featured on RTE radio’s Outside the Box
Members of the Irish Fragile X Society took part in a programme to raise awareness of Fragile X Syndrome.
Chairperson of the Irish Fragile X Society Maria Panza joined other parents and educational psychologist Colin Reilly in a discussion on Fragile X Syndrome. Topics covered included the support needs of families at the time of diagnosis, the importance of early intervention and the need for professionals to be informed about the condition and the kinds of strategies that are effective. The discussion touched on some of the frustrating but endearing aspects of Fragile X. Listen to the programme here.