Clodagh O’Keeffe, a researcher from Trinity College Dublin, is looking for both females and males between the ages of 25 and 65 who carry the genetic premutation for Fragile X Syndrome (FXS), as well as those who do not carry the premutation, to take part in new research. The study aims to look at how the premutation can [...]

Handouts http://fragilexireland.org/wp-content/uploads/2013/01/ConferenceHandouts.pdf

Margaret and Paul Nolan had never heard of Fragile X when their two young sons were diagnosed with it in 2004. They spoke recently to the Irish Farmers Journal about their lives since then and about some of the benefits of life on the farm for Liam (10) and Sean (8). Read the full article [...]