Niamh Mc Devitt a researcher from Trinity College Dublin is looking for people between the ages of 28 and 50, who carry the genetic premutation for Fragile X Syndrome (FXS) to take part in a new research study. The study aims to look specifically at how being a carrier can affect the brain, specifically looking [...]

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Mark your calendars on July 20-24, 2016, for the 15th International Fragile X Conference in San Antonio, Texas at the Marriott Rivercenter! The National Fragile X Foundation’s biennial international conference presents a unique opportunity where researchers and parents can interact throughout the conference. Many researchers have commented on the experience of socializing with the parents of [...]

Margaret and Paul Nolan had never heard of Fragile X when their two young sons were diagnosed with it in 2004. They spoke recently to the Irish Farmers Journal about their lives since then and about some of the benefits of life on the farm for Liam (10) and Sean (8). Read the full article [...]